Grandmother and Carepage Follower
I am writing this in memory of Ethin Twigg. Ethin's mother,Jessica, has asked anyone affected by HLHS to write letters so more support is available for research for childrens heart disease. Sadly,Ethin earned his angel wings last Saturday while his very devoted mother went home to be at a fundraiser for Ethin. My grandson,Parker, also has HLHS. We love him tremendously. His parents never draw an easy breath,worried that he will be exposed to an illness that he is too weak to overcome. He has been hospitalized many times. His mother has used up all available FMLA.. The poor economy and fear of losing his job has kept his father from missing much work when he would prefer to be with his son. Please support in any way possible,funding for CHD, so more can be done for these innocent children so they may grow into a productive adulthood. They suffer so much to stay alive for those who love them dearly!
Laura