Shawn

By Jennifer

Hi my name is Jennifer I am Shawns mom. Shawn was born with HLHS.We chose the 3 stage surgery. Shawn had his Norwood open heart surgery on January 3rd 2008 and came home on the 19th . He was doing well until about three months old when they decided to do the Glenn early at 3months because of low oxagen sats. When Shawn came back for surgery he was ok for about 3 hours then he came very close to leaving us. He was rushed back to the O.R. and came back in stable condition. Despite that stepback we were sent home about a week later. Shawn was sent home on oxagen because his sats were still in the low 70's. cardio doc said that we should concider another open heart sugery to repair this. Shawn had his reconstuction of the tricuspid valve at CHLA in Los Angelos were one of the best childrens heart docs performs surgerys. Shawns Journey has been long but he has smiled all the way through. By looking at this amazing child you would not know that he was born with only half a heart and had three open heart surgerys and one more to go. I have learned a lot from Shawn but the most important thing is not to take life for granted. Enjoy every moment.Shawn is currently 18 months old and awaiting a pace maker and his Fontan surgery. He has been a fighter since the day he was born. I love him with all my heart.

Jennifer Corradini